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Resilience in the face of chronic disability: A longitudinal study after the onset of spinal cord injury

English title Resilience in the face of chronic disability: A longitudinal study after the onset of spinal cord injury
Applicant Peter Claudio
Number 165484
Funding scheme Project funding (Div. I-III)
Research institution Schweizer Paraplegiker-Forschung AG
Institution of higher education Swiss Paraplegic Research - SPF
Main discipline Psychology
Start/End 01.09.2017 - 30.06.2021
Approved amount 206'942.00
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Keywords (12)

well-being; spinal cord injury; mental health; resilience; adjustment process; depression; anxiety; life satisfaction; positive psychology; critical life events; longitudinal studies; trauma

Lay Summary (German)

Lead
Trotz der schwerwiegenden Auswirkungen einer Querschnittlähmung berichten viele betroffene Menschen von einem stabilen, hohen Wohlbefinden. Unter dem Blickwinkel der Resilienz wird die Entwicklung der Lebenszufriedenheit und psychischen Gesundheit während der Rehabilitation genauer untersucht.
Lay summary

Ziel des Forschungsprojekts

Resilienz steht für Widerstandsfähigkeit und sinnbildlich für einen konstruktiven Bewältigungsprozess im Umgang mit kritischen Lebensereignissen. Eine hohe Lebenszufriedenheit und eine gute psychische Gesundheit werden häufig als Merkmale der Resilienz gesehen. Studien zeigen, dass viele Menschen nach einer Querschnittlähmung trotz der schwerwiegenden Folgen psychisch gesund und mit ihrem Leben zufrieden sind. Die Unterschiede zwischen den Betroffenen sind allerdings erheblich. Um besser zu verstehen, wie die Lebenszufriedenheit und die psychische Gesundheit durch die Verletzung beeinflusst werden und wie sie sich im weiteren Lebensverlauf entwickeln, müssen sie in Längsschnittstudien zu mehreren Zeitpunkten gemessen werden.

Das vorliegende Projekt legt den Fokus auf den Rehabilitationskontext und somit auf die ersten Monate nach einer Querschnittlähmung. Es wird untersucht, wie sich die Lebenszufriedenheit und die psychische Gesundheit bei den Betroffenen während der Rehabilitation verändert. Der zentrale Leitgedanke besteht darin, die Ursachen dieser Veränderungen zu verstehen und Faktoren zu identifizieren, welche den Bewältigungsprozess positiv beeinflussen und Resilienz fördern. 

Wissenschaftlicher und gesellschaftlicher Kontext

Zu verstehen, wie sich die Lebenszufriedenheit und die psychische Gesundheit innerhalb der Rehabilitation verändern und welche Faktoren eine positive Entwicklung begünstigen, bildet die Grundlage für gezielte Interventionen.

Direct link to Lay Summary Last update: 25.05.2016

Responsible applicant and co-applicants

Employees

Publications

Publication
Profiles of Psychological Adaptation Outcomes at Discharge From Spinal Cord Injury Inpatient Rehabilitation
Galvis Aparicio Mayra, Carrard Valerie, Morselli Davide, Post Marcel W.M., Peter Claudio (2020), Profiles of Psychological Adaptation Outcomes at Discharge From Spinal Cord Injury Inpatient Rehabilitation, in Archives of Physical Medicine and Rehabilitation, 101(3), 401-411.
Adaptation During Spinal Cord Injury Rehabilitation: The Role of Appraisal and Coping
Galvis AparicioMayra, KunzSimon, MorselliDavide, PostMarcel W.M., PeterClaudio, CarrardValerie, Adaptation During Spinal Cord Injury Rehabilitation: The Role of Appraisal and Coping, in Rehabilitation Psychology.
Longitudinal Changes in Psychological Adaptation Outcomes During Spinal Cord Injury Inpatient Rehabilitation
Galvis AparicioMayra, CarrardValerie, Kunz Simon, MorselliDavide, PostMarcel W.M., PeterClaudio, Longitudinal Changes in Psychological Adaptation Outcomes During Spinal Cord Injury Inpatient Rehabilitation, in Rehabilitation Psychology.

Collaboration

Group / person Country
Types of collaboration
Dr. Davide Morselli /Department of Social Sciences and Politics, University of Lausanne, Switzerland Switzerland (Europe)
- in-depth/constructive exchanges on approaches, methods or results
- Publication
Study Center of the Swiss Spinal Cord Injury Cohort at Swiss Paraplegic Research (SPF), Nottwil Switzerland (Europe)
- Research Infrastructure
Dr. Marcel W.M. Post Netherlands (Europe)
- in-depth/constructive exchanges on approaches, methods or results
- Publication

Scientific events

Active participation

Title Type of contribution Title of article or contribution Date Place Persons involved
9th E-Meeting of the European Spinal Psychologist Association Poster Longitudinal course and predictors of psychological adaptation outcomes: An exploration of the clinical rehabilitation setting 06.05.2021 Online, Switzerland Galvis Aparicio Mayra Juliana;
Health Preconference of the Annual Convention of the Society for Personality and Social Psychology Poster Profiles of psychological adaptation to a newly acquired SCI: A person-centered approach 27.02.2020 New Orleans, United States of America Galvis Aparicio Mayra Juliana;
Annual Convention of the Society for Personality and Social Psychology Poster Psychological Adaptation and Associated Biopsychosocial Factors during Spinal Cord Injury Inpatient Rehabilitation 27.02.2020 New Orleans, United States of America Galvis Aparicio Mayra Juliana;
16th conference of the Swiss Psychological Society, Bern, Switzerland, September Talk given at a conference Psychological adaptation following spinal cord injury: identifying profiles at the end of rehabilitation 09.09.2019 Bern, Switzerland Galvis Aparicio Mayra Juliana;
8th Meeting of the European Spinal Psychologist association Talk given at a conference Profiles of psychological adaptation to spinal cord injury at the end of first rehabilitation 21.03.2019 Zürich, Switzerland Galvis Aparicio Mayra Juliana;
32nd Annual Conference of the European Health Psychology Society Poster Profiles of Psychological Adaptation to Spinal Cord Injury at Rehabilitation Discharge: Work in progress 21.08.2018 Galway, Ireland Galvis Aparicio Mayra Juliana;
Society for Longitudinal and Life Course Studies International Conference Poster Psychological Adaptation to Spinal Cord Injury in the Rehabilitation Setting: Work in Progress 09.07.2018 Milano, Italy Galvis Aparicio Mayra Juliana;


Knowledge transfer events

Active participation

Title Type of contribution Date Place Persons involved
SwiSCI Interest Group Meeting Talk 24.04.2021 Online, Switzerland Galvis Aparicio Mayra Juliana;
SwiSCI Interest Group Meeting Talk 09.11.2018 Basel, Switzerland Galvis Aparicio Mayra Juliana;


Associated projects

Number Title Start Funding scheme
149284 Posttraumatic growth after spinal cord injury: predictors, correlates and adaptive significance. A longitudinal study 01.09.2014 Project funding (Div. I-III)

Abstract

People cope differently with adverse life events. Resilience broadly refers to a positive adjustment in the context of significant threats to an individual’s life or function. Within the field of stress and trauma, the focus on resilience represents a shift from a purely deficit-oriented approach towards a competence-based model aiming to maintain and build strengths in addition to address psychopathology. Research on the impact of acute adverse life events, such as widowhood, divorce, or disaster, suggests that individuals can preserve resilience in the aftermath of these events. Advocating a thorough, population-based examination of resilience following disability onset and using spinal cord injury (SCI) as a case in point for the severe impact of the sudden-onset of chronic disability, it is the aim of this research project (1) to understand resilience and the adjustment process following SCI, and (2) to identify the factors that influence this process.Research on resilience and the adjustment process to disability onset are coupled together, because resilience is best understood by thoroughly examining the adjustment process. However, current disability-related research is subject to two major shortcomings, which will be tackled in the current research project. First, a main limitation lies in the use of average scores to describe how individuals adjust to disability onset because in the context of an adjustment process over time average scores fail to capture both changes within and variability among the individuals. Statistical methods that facilitate the testing of this heterogeneity, and hence allow for the identification of different trajectories as well as resilient and vulnerable subgroups at a population level, need to be applied. Second, only few studies have used and tested adjustment models, and their findings are largely limited by the cross-sectional study design impeding causal statements, and a focus on specific model components only. An in-depth scientific understanding of resilience and the underlying multi-factorial process requires the use of a theory-guided, multi-factorial approach and testing of an adjustment model using a longitudinal study design.The overarching aim of this research project is to gain a thorough understanding of resilience and the adjustment process following the onset of SCI. Resilience will be operationalized with several indicators of well-being and mental health, including life satisfaction, symptoms of depression, anxiety and general distress. Three studies will be conducted. First, we will test whether different subgroups can be identified across all indicators assessed at rehabilitation discharge. Second, the longitudinal development of well-being and mental health following the onset of SCI will be investigated, and predictors distinguishing the observed trajectories identified. Third, an adjustment model and inherent mediation mechanisms will be tested to understand the longitudinal impact of psychological, biological and social factors on well-being and mental health.This project is nested within the Swiss Spinal Cord Injury study (SwiSCI), a multi-center, longitudinal inception cohort study. The findings will have a strong representative character for the Swiss SCI population because all four major specialized SCI rehabilitation centers in Switzerland participate in SwiSCI. A close investigation of resilience and the identification of different trajectories and resilient and vulnerable subgroups can support clinical decision making and set the ground for targeted interventions.
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