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De-SequencingIdentity Work with Genes

Type of publication Peer-reviewed
Publikationsform Book (peer-reviewed)
Author Chiapperino Luca, Panese Francesco,
Project Development of Personalized Health in Switzerland: Social Sciences Perpectives
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Book (peer-reviewed)

Publisher Springer Singapore, Singapore
ISBN 978-981-15-7727-7
DOI 10.1007/978-981-15-7728-4_8

Abstract

This chapter focuses on both the moral and the epistemic aspects of the critique presented by Barbara Prainsack’s analysis of precision medicine as a new challenge for ELSA research. The authors complement her proposal with an emphasis on the relevance and value of practical experimentation with solidarity in personalised medicine that are both moral and techno-epistemic. As to the former, their objective is to complement her diagnosis on (what could be called) the moral economy of personalised medicine with a reflection on the role of solidarity-based engagements and moral practices to counter the moral dystopia furthered through this paradigm. As to the latter, instead, their goal is to show how working towards interoperability of data responds to distinct epistemic and techno-scientific objectives of biomedical actors, some of which can arguably be characterised as going in the direction of furthering solidarity-sensitive practices in our societies through personalised medicine.
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